Ride to Pikes Peak

An opportunity for a mother and son to do something special for Polycystic Kidney Disease, for organ donation and for us.

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In 1806, Zebulon Pike traveled west and sighted Pikes Peak. We biked 990 miles along his route and then ran the Pikes Peak Marathon. We are so grateful for the opportunity to raise PKD awareness. PKD caused the failure of Pat’s kidneys. A transplant saved her life eight years ago. Pat’s brothers, sisters and mother were afflicted with PKD, seven in all. Pat describes how PKD affected her life and televised news features are in the "News Coverage" link on the left margin.

Tuesday, June 18, 2013

My Mother's Interview

Video links of my mom's interview describing her experience with PKD and her kidney transplant were lost so I uploaded them new to YouTube.
Part One: PKD and the Florine family The first diagnosis, the loss of her mother and the impact on her brothers and sisters
Part Two: Pat is diagnosed with PKD Being tested before having kids, dealing with the diagnosis, the tendency towards denial and the unbelievable comments of a medical student
Part Three: Dialysis then a transplant Dialysis experience, the transplant list, the donor and others who benefited, the donor was a perfect match “it was as though he were like my son”
Part Four: Eight years after A list of goals written in hope of a kidney transplant, what she’s accomplished, she monitors her health and volunteers for organ transplant awareness
Part Five: Work with the blind and visually impaired Pat worked to develop mobility skills for visually impaired adults, she describes the work and the clients
Part Six: For PKD research and organ donation We hope to raise PKD awareness, what PKD Foundation can do, the need for more Americans to become organ donors