Can you imagine why anyone would do this?
We've got two goals. (1) Have fun. (2) Raise PKD awareness.
More than any other, PKD is a disease that affects families. It's an attack on your opportunity to build a family and live with them.
Imagine being the youngest in your large family. Imagine your mother died when you were 12 years old and your brothers and sisters suffered and died from a disease which you also have. How would you feel? Imagine being married and telling your spouse about the possibilities that your children will inherit PKD from you.
Or imagine that your mother has a disease which will probably kill her. It doesn't register when you're a kid but when you get older you see her develop symptoms of the disease. Your aunts and uncles die. Your mom begins dialysis. You get a phone call and leave to be there when your mom wakes up with a transplanted kidney. And then your mom is there after your son is born. And then she's there when your sister is married. And she's there for you now.
More than any other, PKD is a disease that affects families. It's an attack on your opportunity to build a family and live with them.
Imagine being the youngest in your large family. Imagine your mother died when you were 12 years old and your brothers and sisters suffered and died from a disease which you also have. How would you feel? Imagine being married and telling your spouse about the possibilities that your children will inherit PKD from you.
Or imagine that your mother has a disease which will probably kill her. It doesn't register when you're a kid but when you get older you see her develop symptoms of the disease. Your aunts and uncles die. Your mom begins dialysis. You get a phone call and leave to be there when your mom wakes up with a transplanted kidney. And then your mom is there after your son is born. And then she's there when your sister is married. And she's there for you now.
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