Interview segments posted
My friends John, Kerry and Patrick helped me create and post these short segments of an interview mother and I taped in February. The files are set up for Windows Media Player streaming.
Part One: PKD and the Florine family
The first diagnosis, the loss of her mother and the impact on her brothers and sisters
Part Two: Pat is diagnosed with PKD
Being tested before having kids, dealing with the diagnosis, the tendency towards denial and the unbelievable comments of a medical student
Part Three: Dialysis then a transplant
Dialysis experience, the transplant list, the donor and others who benefited, the donor was a perfect match “it was as though he were like my son”
Part Four: Eight years after
A list of goals written in hope of a kidney transplant, what she’s accomplished, she monitors her health and volunteers for organ transplant awareness
Part Five: Work with the blind and visually impaired
Pat worked to develop mobility skills for visually impaired adults, she describes the work and the clients
Part Six: For PKD research and organ donation
We hope to raise PKD awareness, what PKD Foundation can do, the need for more Americans to become organ donors
Part One: PKD and the Florine family
The first diagnosis, the loss of her mother and the impact on her brothers and sisters
Part Two: Pat is diagnosed with PKD
Being tested before having kids, dealing with the diagnosis, the tendency towards denial and the unbelievable comments of a medical student
Part Three: Dialysis then a transplant
Dialysis experience, the transplant list, the donor and others who benefited, the donor was a perfect match “it was as though he were like my son”
Part Four: Eight years after
A list of goals written in hope of a kidney transplant, what she’s accomplished, she monitors her health and volunteers for organ transplant awareness
Part Five: Work with the blind and visually impaired
Pat worked to develop mobility skills for visually impaired adults, she describes the work and the clients
Part Six: For PKD research and organ donation
We hope to raise PKD awareness, what PKD Foundation can do, the need for more Americans to become organ donors
1 Comments:
HI MY NAME IS DONNA & I TOO HAVE PKD,I LIVE IN CENTENNIAL COLORADO WITH MY HUSBAND AND TWO GIRLS MY OLDEST IS IN COLLEGE. I WANT TO THANK YOU VERY MUCH FOR EVERYTHING THAT YOU ARE DOING TO GET THE (WORD)INFORMATION OUT ABOUT PKD..I HOPE THAT I CAN CHEER YOU ON IN PERSON IN AUGUST IF NOT I WILL BE THERE IN THOUGHT. THANK YOU AGAIN FOR ALL THAT YOU ARE DOING FOR ALL OF US WITH PKD...YOUR MOM IS VERY BLESSED TO HAVE A SON LIKE YOURSELF!!
DONNA
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