Ride to Pikes Peak

An opportunity for a mother and son to do something special for Polycystic Kidney Disease, for organ donation and for us.

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In 1806, Zebulon Pike traveled west and sighted Pikes Peak. We biked 990 miles along his route and then ran the Pikes Peak Marathon. We are so grateful for the opportunity to raise PKD awareness. PKD caused the failure of Pat’s kidneys. A transplant saved her life eight years ago. Pat’s brothers, sisters and mother were afflicted with PKD, seven in all. Pat describes how PKD affected her life and televised news features are in the "News Coverage" link on the left margin.

Wednesday, April 19, 2006

Interview segments posted

My friends John, Kerry and Patrick helped me create and post these short segments of an interview mother and I taped in February. The files are set up for Windows Media Player streaming.

Part One: PKD and the Florine family
The first diagnosis, the loss of her mother and the impact on her brothers and sisters

Part Two: Pat is diagnosed with PKD
Being tested before having kids, dealing with the diagnosis, the tendency towards denial and the unbelievable comments of a medical student

Part Three: Dialysis then a transplant
Dialysis experience, the transplant list, the donor and others who benefited, the donor was a perfect match “it was as though he were like my son”

Part Four: Eight years after
A list of goals written in hope of a kidney transplant, what she’s accomplished, she monitors her health and volunteers for organ transplant awareness

Part Five: Work with the blind and visually impaired
Pat worked to develop mobility skills for visually impaired adults, she describes the work and the clients

Part Six: For PKD research and organ donation
We hope to raise PKD awareness, what PKD Foundation can do, the need for more Americans to become organ donors

1 Comments:

Anonymous Anonymous said...

HI MY NAME IS DONNA & I TOO HAVE PKD,I LIVE IN CENTENNIAL COLORADO WITH MY HUSBAND AND TWO GIRLS MY OLDEST IS IN COLLEGE. I WANT TO THANK YOU VERY MUCH FOR EVERYTHING THAT YOU ARE DOING TO GET THE (WORD)INFORMATION OUT ABOUT PKD..I HOPE THAT I CAN CHEER YOU ON IN PERSON IN AUGUST IF NOT I WILL BE THERE IN THOUGHT. THANK YOU AGAIN FOR ALL THAT YOU ARE DOING FOR ALL OF US WITH PKD...YOUR MOM IS VERY BLESSED TO HAVE A SON LIKE YOURSELF!!
DONNA

4/20/2006  

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