Caught up to Zeb
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The Lake of Ozarks is the best! Jackie Janus works on publicity for the Lake and since I first traded e-mails with her last week she has worked on promoting PKD and helping our effort. She helped line up TV and newspaper coverage including a front page story at the Lake Sun Leader. It's in News Links also. We met at the dam and after a cookie reception at Willmore Lodge she even helped us toast Zeb Pike! We love the Lake!!!
My cousin Angie whose family has PKD surprised us at the cookie reception. Feels great to be doing something, trying something to make a difference for families with PKD. We talked about House Bill 1227 which is struggling in the US House of Representatives. The bill protects from discrimination in health care and employment after genetic testing for disease.
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