Ride to Pikes Peak

An opportunity for a mother and son to do something special for Polycystic Kidney Disease, for organ donation and for us.

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In 1806, Zebulon Pike traveled west and sighted Pikes Peak. We biked 990 miles along his route and then ran the Pikes Peak Marathon. We are so grateful for the opportunity to raise PKD awareness. PKD caused the failure of Pat’s kidneys. A transplant saved her life eight years ago. Pat’s brothers, sisters and mother were afflicted with PKD, seven in all. Pat describes how PKD affected her life and televised news features are in the "News Coverage" link on the left margin.

Friday, August 04, 2006

Caught up to Zeb

We're at Lake of the Ozarks on the date 200yrs ago when Zebulon Pike arrived at the same spot. We're following his route on the Missouri, Osage and Arkansas Rivers. We drank a toast to Zeb at dinner.

The Lake of Ozarks is the best! Jackie Janus works on publicity for the Lake and since I first traded e-mails with her last week she has worked on promoting PKD and helping our effort. She helped line up TV and newspaper coverage including a front page story at the Lake Sun Leader. It's in News Links also. We met at the dam and after a cookie reception at Willmore Lodge she even helped us toast Zeb Pike! We love the Lake!!!

My cousin Angie whose family has PKD surprised us at the cookie reception. Feels great to be doing something, trying something to make a difference for families with PKD. We talked about House Bill 1227 which is struggling in the US House of Representatives. The bill protects from discrimination in health care and employment after genetic testing for disease.

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