A new opportunity for us

In an earlier post I noted that many people in families with PKD do not find out if they have the disease. There is the impact of confirming an incurable disease AND a diagnosis could affect their life or health insurance and might even affect their employment.

The PKD Foundation is working on preventing this type of discrimination based on genetic testing and information. A bill is making it's way through the US Senate and US House of Representatives. August and September are critical for progress. During RTPP we may have an opportunity to build support for this bill before the end of the legislative session.