Ride to Pikes Peak

An opportunity for a mother and son to do something special for Polycystic Kidney Disease, for organ donation and for us.

My Photo
Name:

In 1806, Zebulon Pike traveled west and sighted Pikes Peak. We biked 990 miles along his route and then ran the Pikes Peak Marathon. We are so grateful for the opportunity to raise PKD awareness. PKD caused the failure of Pat’s kidneys. A transplant saved her life eight years ago. Pat’s brothers, sisters and mother were afflicted with PKD, seven in all. Pat describes how PKD affected her life and televised news features are in the "News Coverage" link on the left margin.

Wednesday, May 10, 2006

Let's be practical

Pat Pokorny volunteers at Conner Prairie. The "living history museum" in Indianapolis is incredible. Go to their website. Pat, who grew up on an Iowa farm, has been working with the livestock of the recreated frontier community. Here is a photo of her and "Blue". Thank you Conner Prairie staff for the photo.

Indulge my practical nature for a second and think about these three women.
  1. a woman active all her life but becoming isolated and burdened by exhaustion and hours of weekly dialysis
  2. a woman with a kidney tranplant who continues for seven years her full-time job helping the blind. She retires and continues volunteering and inspiring others
  3. a woman (in the future) who uses new treatments to prevent cysts from forming in her kidneys. She has options to greatly reduce or even eliminate any chance of passing PKD to her children.
I think about those three women and I find it a pretty compelling proposition that the U.S. would benefit from more registered organ and tissue donors and from developing an effective treatment for PKD.

To learn about the first two women view the interview with Pat or read Pat's PKD story.

0 Comments:

Post a Comment

<< Home