Ride to Pikes Peak

An opportunity for a mother and son to do something special for Polycystic Kidney Disease, for organ donation and for us.

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In 1806, Zebulon Pike traveled west and sighted Pikes Peak. We biked 990 miles along his route and then ran the Pikes Peak Marathon. We are so grateful for the opportunity to raise PKD awareness. PKD caused the failure of Pat’s kidneys. A transplant saved her life eight years ago. Pat’s brothers, sisters and mother were afflicted with PKD, seven in all. Pat describes how PKD affected her life and televised news features are in the "News Coverage" link on the left margin.

Monday, May 01, 2006

Chances are

Last week I e-mailed my "coffee with dad" post to family, friends and contacts. It became an announcement of the effort to a lot of people I know. On Sunday at church I talked with Barb who's aunt has PKD - it runs in her family. My friend Jeff, who organizes the 180 Energy Runners (and our 2005 Pikes Peak trip - see photo), introduced me to his co-worker, Bob, who recently was diagnosed with PKD.

The primary form of PKD affects about 1-in-400 adults. The other form, ARPKD is less common, affecting 1-in-10,000 at a far younger age, including newborns, infants and children.

How many of those 400 adults are aware of PKD? How many are registered as organ donors? --- In a broader philosophical sense, how many of those 400 people actually believe they can make a difference through their actions? --- Not enough. --- That's a problem. --- People (especially in America) have the opportunity to make a difference. It's not easy but it's opportunity. Now stepping off my soapbox and back into my running shoes.

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