Chances are
Last week I e-mailed my "coffee with dad" post to family, friends and contacts. It became an announcement of the effort to a lot of people I know. On Sunday at church I talked with Barb who's aunt has PKD - it runs in her family. My friend Jeff, who organizes the 180 Energy Runners (and our 2005 Pikes Peak trip - see photo), introduced me to his co-worker, Bob, who recently was diagnosed with PKD.
The primary form of PKD affects about 1-in-400 adults. The other form, ARPKD is less common, affecting 1-in-10,000 at a far younger age, including newborns, infants and children.
How many of those 400 adults are aware of PKD? How many are registered as organ donors? --- In a broader philosophical sense, how many of those 400 people actually believe they can make a difference through their actions? --- Not enough. --- That's a problem. --- People (especially in America) have the opportunity to make a difference. It's not easy but it's opportunity. Now stepping off my soapbox and back into my running shoes.
The primary form of PKD affects about 1-in-400 adults. The other form, ARPKD is less common, affecting 1-in-10,000 at a far younger age, including newborns, infants and children.
How many of those 400 adults are aware of PKD? How many are registered as organ donors? --- In a broader philosophical sense, how many of those 400 people actually believe they can make a difference through their actions? --- Not enough. --- That's a problem. --- People (especially in America) have the opportunity to make a difference. It's not easy but it's opportunity. Now stepping off my soapbox and back into my running shoes.
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