Chances are

The primary form of PKD affects about 1-in-400 adults. The other form, ARPKD is less common, affecting 1-in-10,000 at a far younger age, including newborns, infants and children.
How many of those 400 adults are aware of PKD? How many are registered as organ donors? --- In a broader philosophical sense, how many of those 400 people actually believe they can make a difference through their actions? --- Not enough. --- That's a problem. --- People (especially in America) have the opportunity to make a difference. It's not easy but it's opportunity. Now stepping off my soapbox and back into my running shoes.
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