I've never heard of PKD before? Is it a new disease?

In the 1700s and 1800s, PKD was often given the label of Bright's disease. This term encompassed any of several kidney diseases marked by high concentrations of protein in the urine. Today, we know that many of the cases of Bright's disease were actually cases of PKD. The first documented case of PKD dates back to Stefan Bathory, the King of Poland, who lived from 1533 to 1588.

In addition, the PKD Foundation is the only organization in the world that focuses on PKD and it was not formed until the mid-1980s. It wasn't until fairly recently that PKD has gained some momentum in raising awareness and funds for the disease.

Another reason many have not heard of PKD is because it is an “internal disorder” — meaning that it does not have a dramatic affect on a person's outward appearance. A person living with PKD may have pain or trauma on their internal organs, yet they maintain a very “normal” physical appearance that does not attract attention or compassion from the unknowing public.

Above is from the PKD Foundation website.

This might provide clues why America hasn't heard of PKD but it's no justification for complacency. America (and the world) would benefit tremendously from breakthrough research which could stop cysts from forming and which could keep people off dialysis and keep PKD from progressing to renal failure. It would really make a difference for individuals and for society.